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RE: Anybody out there with fibromyalgia? - 7/25/2010 10:05:25 PM
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BugLady
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Thanks for sharing, Adrenalinejunkie. :)
I've come up with a way to replicate the pain for people who ask, but I have to ask them if I may hurt them first. I employ a law enforcement technique used to gain control over an "unruly" subject. It gets the point across.
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RE: Anybody out there with fibromyalgia? - 7/26/2010 11:24:37 AM
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cherish405
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Good way to show them.
I'm all for education. If people ask me questions, I'll answer them the best that I can. Since I've been diagnosed, I've found out that I know a lot of people who also have fibromyalgia. Some know what it is, and others don't. People won't learn unless they are taught. When it comes to health issues, ignorance is not bliss. Better to know what's going on so that you know what you're fighting. Well, that's my thinking anyway. You know what you may expect, and hopefully be ready to do something about it, if possible.
People often just think you're being lazy or trying to get out of doing something. The couple that I live with do the vast majority of things because I just can't. I do what I can, but it's not much.
I was happy to be told that I have fibromyalgia. I have so many health issues that I thought were separate from each other. To find out it was all from ONE condition, I finally thought, "At least now I know I'm not nuts!" I still have the health conditions, but at least I know what the cause is. Not some random thing.
Roberta, I know what you mean about back pain. I was diagnosed years ago with back problems. That's worsened, but with the fibromyalgia being there, it's so much worse.
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 7/27/2010 11:20:05 PM
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BugLady
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If you know or care for anyone living with fibromyalgia - or even if you don't and you are reading this thread - please read THIS
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RE: Anybody out there with fibromyalgia? - 7/28/2010 10:51:06 AM
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cherish405
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Great article! I've put it on Facebook! Haven't listened to the voices yet, but I'll go back to it. Thanks!
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 7/29/2010 10:33:46 AM
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cherish405
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Education and awareness is a good thing!
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 7/29/2010 11:31:10 PM
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Adrenalinejunkie
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Today started off really good for me, relatively painless. But after playing outside with my little brother a few hours ago I've been hurting REALLY badly. This is probably the worst pain I've been in this year. I'm not really sure why I'm in so much pain though. Maybe it had to do with getting 2 thunderstorms earlier and having insanely high humidity.
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RE: Anybody out there with fibromyalgia? - 7/30/2010 7:35:35 AM
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cherish405
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Ouch, you two!
Roberta, just do what you can, and either try to get some help for the other things or leave them. Unfortunately we can't do all the things we sometimes want to.
AJ, I know weather definitely affects me. Temperature extremes do bad things to my body.
I'm so sorry both of you are in so much pain.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 7/31/2010 10:40:48 AM
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cherish405
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My back gives me a lot of pain. Yes, I have some that is not fibro related, but a lot of it is. Had a splitting headache this morning when I woke up. This afternoon, I've had the sensation that somebody's been rubbing me down with coarse sandpaper. OUCH! Taken the last of my pain meds for the day.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 8/2/2010 9:56:08 AM
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cherish405
Posts: 8582
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From: The Land Down Under
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I hope you can get things done with a minimum of pain.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 8/2/2010 1:18:25 PM
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cherish405
Posts: 8582
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Sounds like you've been a real blessing, helping people out with food. I'm sure they appreciate that. Hopefully by the time the apples are in, that if you plan to do any baking etc with them, that you'll be in a better place, painwise.
Good for you, though.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 8/11/2010 11:15:24 AM
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cherish405
Posts: 8582
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Hey everybody. How are you all doing?
I've got my chronic pain management sessions coming up in a couple of weeks. It'll be interesting to see how much of it I can do. I'm not flexible, so some of the exercises could get a little interesting. I'm hoping it's not a new age thing.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 8/22/2010 12:01:12 PM
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cherish405
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Pain management put off my appointment and I don't know when I'll be going now.
I hope you're all doing well and staying painfree.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 8/23/2010 9:54:00 AM
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cherish405
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Sorry to hear that you've been in so much pain, Roberta.
Travelling mercies upon you as you travel.
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 8/25/2010 12:24:10 PM
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Pat-rebel_lady
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cherish405
quote:
I've got my chronic pain management session coming up...
Can you explain just what this is? What do you have to do in these sessions? How do they figure you can 'manage' chronic pain? I just can't seem to get my mind around this.
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RE: Anybody out there with fibromyalgia? - 8/25/2010 12:31:10 PM
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cherish405
Posts: 8582
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At this stage, I have no idea what they are going to do to try and relieve chronic pain.
The chronic pain management sessions are something that are being put together by a physiotherapist and a clinical psychologist. It's only 2 mornings. I take it they will try to get us to do some mediitation. I hope it's not new age, otherwise I'll be meditating on Jesus. I take it there will be some stretching involved. Working on maybe, time management so that you don't get yourself totally stressed out about things, and therefore causing yourself more pain.
I have my first session at the end of next week. I'll tell you more about it when I find out what we're doing.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 8/25/2010 1:56:34 PM
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Pat-rebel_lady
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Thank you.
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RE: Anybody out there with fibromyalgia? - 8/30/2010 10:53:40 AM
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cherish405
Posts: 8582
Joined: 4/11/2005
From: The Land Down Under
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I hope you get a little bit of a chance to get out and stretch a bit every now and again. I know you're looking forward to getting home, but if you can do it with a bit less pain, that would be good too.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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